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App design: Cystinosis & Me

Services: UX design, app design, user research

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The challenge

Cystinosis & Me is a patient support app developed by Recordati Rare Diseases to help individuals living with cystinosis manage their treatment plans and daily health routines. The aim was to create a tool that could support patients in staying on top of their medication, appointments, and emotional well-being. The brief was to design the visual interface of the app and collaborate with developers to ensure the experience was both functional and user-centred.

The solution

  • Designed the full app interface with a focus on clarity, accessibility, and ease of use for patients managing a complex rare disease

  • Collaborated closely with external developers to implement key functionality, including patient reporting features

  • Developed interactive scheduling tools to allow patients to log medications and receive timely reminders

  • Designed features for tracking upcoming healthcare appointments, with automated alerts

  • Created a measurement tracking system for users to log pain levels, mental health, and emotional states using visual indicators and word-based selections

  • Developed a reporting system that compiles user-entered data into summaries patients can share with their healthcare professionals

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